Patient Participation

Exploring the Institute for Neurodegenerative Disorders’ non-traditional approach to engaging community physicians.

President of Commercial Solutions at Syneos Health, Michelle Keefe, writes how the industry must take an additional step beyond explaining and predicting customer behavior, and employ evidence-based strategies to change their behavior by helping customers make well-informed decisions.

A case study of a Parkinson’s disease trial demonstrates how one study team met its enrollment goals.

Tracking the evolution and effectiveness of CISCRP’s clinical research awareness and literacy campaigns.

First column in this series looks at the effectiveness of digital marketing as an outreach tool.

How mapping patients’ health journeys can drive a deeper understanding of their experiences and motivations.

One nonprofit’s efforts to raise the relevance of the clinical research enterprise.

Age diversity in clinical trials benefits both the patient experience and the success of the trial.

Providing easy to understand and culturally appropriate investigational medication education and support can make all the difference in improving the patient experience.

May includes a number of events to get more visibility for clinical trial awareness, and to offer it as a care option.

The third in a series of results from the Center for Information and Study on Clinical Research Participation’s (CISCRP) landmark 2017 Perceptions & Insights Study.

Lisa Henderson talks about the topic of "who owns a patient's data" as discussed at the Bridging Clinical and Healthcare Conference 2018.

The second series of results from the Center for Information and Study on Clinical Research Participation’s (CISCRP) landmark 2017 Perceptions & Insights Study.

Building upon the usage of technology in health care delivery, integrating technology into clinical research as a care option will be a game changer in achieving greater participation in clinical research and decreasing the overall time for trial completion.

The use of Learning Health Systems in order to advance clinical research.

Lisa Henderson writes on patient participation and recruitment in clinical trials.

The first series of results from the Center for Information and Study on Clinical Research Participation’s (CISCRP) landmark 2017 Perceptions & Insights Study.

In this interview, Julie Dietrich will provide more information regarding this Clinical Research Access & Information Exchange Initiative and how it is expected to benefit patients and the industry.

Sandy Chase focuses on the voice of the patient and their experience after not completing a clinical trial.

Recent study, and others in literature, inform misconceptions around physician and nurse involvement in clinical trials. 

Q&A discusses how the bridging of scientific merit with the needs of patients can lead to successful clinical development.

In this article, we will analyze themes from asthma patient conversations via HealthUnlocked, an online healthcare social network, and compare these themes to asthma clinical trial endpoints from large pharma studies.

We explore the remote trial and hybrid models in clinical trial patient centricity with Hassan Kadhim, an executive at Boehringer Ingelheim.

Our series on patient centricity continues with a patient perspective on her interpretation of this subject. Shelly Hoover, an ALS patient, shares her views with Moe Alsumidaie.

Finding the right clinical trial for yourself or others can be confusing and challenging. Matching services could provide potential relief, but only if aligned with both the physician and the patient.

It’s clear that pharma companies are working to embrace patient centricity and figure out where it best fits into their organizations. How this concept will be integrated into the structure of a company remains to be seen.

Rising patient engagement in drug development has been welcomed when it comes to discussions of policy. In Europe, a new initiative has emerged that aims to improve this theme by finding the right balance into patient links with decision-making on medicines.